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Psychological effects of hidradenitis suppurativa
After a dreadfully cold winter season, you excitedly don on a tank top and shorts. However, as you slip on that tank top, you notice painful red bumps on your armpits. You pull at your skin to get a better look of it in the mirror before dejectedly slipping off the tank top, and changing to something that will cover those unsightly red bumps. Is this acne or folliculitis? Why does it keep coming back? What is wrong with me?
Hidradenitis suppurativa (HS) is a type of chronic inflammatory skin condition that causes painful red bumps and abscesses in areas where the skin rubs together—primarily the armpits, breasts, groin, and buttocks. Hidradenitis suppurativa is thought to initially be caused by the abnormal plugging of hair follicles. Friction from skin rubbing together in affected areas can lead to inflammation of the plugged hair follicle, and in some cases, abscess formation. Ruptured abscesses can lead to sinus tract development and scarring of the skin.
Hidradenitis suppurativa (HS) is seen more commonly in women than men and tends to affect women between the age of 18-44.[1] Risk factors for HS include a family history of HS, tobacco use and obesity. It is usually diagnosed clinically by a physician based on the physical appearance and location of the lesions. Another major clue in the diagnosis of HS is based on the tendency for the characteristic lesions to recur.[2]
Since HS tends to affect areas of the body that are more “private,” people suffering from HS often feel embarrassed about their condition. This can ultimately lead to difficulty engaging in intimate relationships and low self-esteem.[3,4] The pain, drainage, abnormal odor and scarring of the lesions, and the fact that it can be difficult to treat, all contribute to psychological distress in individuals affected by HS.[5] Although HS is not contagious, some people report fearing that others would think so.[6]
A study conducted in 2015 found that a greater proportion of patients with HS suffered from depression and anxiety when compared to healthy controls, even after controlling for age and gender.[7] Individuals with HS are also more likely to report a lower quality of life, which correlates with their disease severity.[5,8]
Patients with HS | Patients without HS | P-value | |
---|---|---|---|
Prevalence of Depression[7] |
5.8% |
3.5% |
(p <0.001) |
Prevalence of Anxiety[9] |
3.8% |
2.3% |
(p <0.001) |
Dermatology Life Quality Index (higher scores correspond to lower quality of life)[8] |
8.35 |
4.34 |
(p <0.001) |
*The information in this table is adapted from multiple studies referenced above.
Many people with HS also find it difficult to do things that they enjoy. The painful nodules are often aggravated by movements that cause the skin to rub together, making it difficult to exercise. Moreover, physical activity is essential to maintaining a healthy mind and body and can be beneficial for boosting low mood states in individuals affected by anxiety and depression.
Although HS is mostly seen and treated as a skin disease, it can have profound impacts on the individual’s mental well-being. Those suffering from HS should be aware of the psychosocial impacts of the disease and reach out for help from a healthcare professional if they find themselves experiencing negative changes in mood.
Topical disinfectants are often used to treat HS, however, there has not been much evidence demonstrating their effectiveness in the treatment of HS. Antibiotics and anti-inflammatory biologic agents are the primary medications used to treat moderate to severe HS. Mild cases of HS can also be treated with steroid injections, but chronic lesions that do not respond to medication, are often treated with surgery.[10]
Although HS may look like acne or folliculitis, it is treated very differently. Early treatment can potentially minimize the chances of progressing to a more severe stage.
Here are some things that can be done to reduce the severity of the disease: